Baby Ginny, 5 months old, gets life-saving S$2.4 million Zolgensma dose after fundraiser

Five-month-old Baby Ginny has finally gotten her S$2.4 million Zolgensma dose.

In an Instagram post on Apr. 9, she could be seen receiving the life-saving medication via intravenous injection.

While she fretted a bit at first, she was generally well-behaved and hospital staff could be heard praising her in the background.

In the caption, her parents said that 1ml of the medication costs S$80,000.

"Thank you all you kind people for making it possible for me.

I hope I get better from here on and don't disappoint you all."

Here are some photos of the occasion:

About SMA

Baby Ginny suffers from Spinal Muscular Atrophy (SMA), a rare and debilitating genetic condition.

It occurs once in every 10,000 to 12,000 births, which translates to two to three new cases in Singapore each year.

To get her the Zolgensma — a one-time gene therapy which can stop disease progression in its tracks — her parents launched a fundraiser on Ray of Hope.

In just 10 days, they met their S$2.4 million fundraising goal, thanks to over 35,000 donors.

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Top image from hopeforbabyginny/Instagram